A Family Affair

Lots of people on other blogs and online support groups have commented on the various reactions from family members once they discover that the person has trich. Sadly, most of these reactions are not pleasant and have caused a lot of pain to the person suffering from trich and part of me thinks that at least a small part of that negative reaction can be attributed to the family member simply not knowing how to react.

I believe that most parents want to help their children but what do you do when your child has a destructive habit/disease that there is no cure for? Many people dont know anything about trich, let alone that it is so much more than a physical problem but that it has such a negative effect on our self esteem. About two posts ago I commented on how my dad would sometimes draw my eyelashes before going away so he could compare, and possibly punish me, if they were not the same when he returned. I've never forgotten that and while I know without a doubt my dad loves me and would never do anything to hurt me, it still has (obviously) had a last impact and was very hurtful and embarrassing. I wonder if it would have been different had our parents reacted differntly? But what could they have done?

My parents tried almost everything to get me to stop. Punishments, therapy, gloves, band aids, embarassment (I was also not allowed to get contacts until I stopped- after I hit 14 and still hadn't stopped what was then a 6 year habit, my parents caved and let me get rid of my hideous glasses. Oh yeah, and my mom used to say "boys dont make passes at girls who wear glasses" as kind of a fucked up incentive. Sweet)

Anyway, I digress. What made me first think to write this post in the first place was that this past weekend I attended a bat mitvah for my cousin and had lots of family around. It brought into sharp focus how many family members I have with some form of trich but also saddened me to think that out of the 8 or so family members that have had the disease in some form, not one ever talked to me about it in a productive way. My cousin, the cousin I am closest to but lives in CA, had trich worse than me but managed to stop. I have tried for YEARS to get her to talk to me about it, even told her about the hypnotist this past weekend, but she just doesnt want to. How can I push it, is that fair to her? I know how embarrassing and hard it can be to talk about it but it still bothers me.

I dont know. Besides my mom who pulled her eyelashes for a short time and then just stopped (and she can offer no helpful tips) my cousin is the person who would be able to relate to me the best. I know I have to let it go but I hope and pray that if I ever have kids or nieces or nephews or even friends that have trich, that I will happily offer them every and any resource and help I can. I hope that one day this is no longer a shameful disease but something people know about and understand, so that we can all feel comfortable talking about it.

Anyway, on another note, my boyfriend met my entire family at the bat mitvah and was a bit hit. We also had some pretty serious discussions this weekend and have decided to move in together. Even though he knows about my trich I still would never want him to see me completely without make up (and my hair is growing back pretty slowly but still growing back) so I have until June to get everything back. Let's hope the hypnosis sticks but my motivation just grew even more!!

Memories good and bad

When I was younger I was about as awkward(as a teenager and pre-teen if I'm being honest) as you could get. I have naturally curly hair that my mother always had me keep just above my shoulders (she insisted this was for the benefit of my swimming since shorter hair drags less) which for anyone else that has curly hair you know that this can be a recipe for disaster- the longer it is, the more it weighs itself down. I refer to it as my "poodle afro" and in those days it was out of control because I was clueless about anything beauty related (and still a bit clueless).

Next was the teen acne which I thought could be covered up with make up but again, since I had no clue how to wear make up, it just made it worse. Mom was no help on this one and most of my friends were either boys or athletes, neither of whom had much need for makeup (the girls were much more blessed than me on almost all look fronts).

My wardrobe selections were atrocious. Thankfully in HS I was in Catholic School and didnt have to worry much about my day to day outfit but on the whole, if it wasnt something I could swim in or work out in, my "style" was hideous and I just didnt have a clue, even for the 80s.

To top it all off I had glasses. Not just glasses, but big glasses that took over most of my pimpled, awkward, eyelash free face. They started off as big blue glasses when I was 8 (shortly after the trich started), turned into enormous red glasses and ending with big round wire glasses. My mom had always told me that I couldnt get contacts until my eyelashes were back. Man, did I want to get rid of the glasses- I tried so hard for years to beat trich and couldnt. By the middle of my freshman year in HS my mom (and I) finally gave up and she let me get contacts (i've since had laser eye surgery which was one of the best purchases of my life).

Despite my general pre-teen/teen hideousness (seriously I am amazed that my parents left the house with me during those years) the one thing I always notice in old pictures is my lack of eyelashes. I was looking at an old picture over the weekend, one of the few I have of me with my grandmother, and the glasses and missing eyelashes makes it hard for me to look at the picture with happy memories. I know that the glasses did bring me some level of comfort, they were my barrier and, in my mind during those years, gave me some refuge from people directly and immediately noticing that my eyelashes were completely gone. It makes me sad, for all the years of anxiety I've suffered, for the photos that should be happy memories but really just make me sad for my younger, insecure self.

Fortunately when I was about 14 (and the acne was going away and the glasses were gone) someone saw me in a mall and offered me a makeover which my mom agreed to. She taught me (finally!) the art of make up application, how to use eyeliner to at least give the initial appearance of having eyelashes (which later was used with my missing eyebrows), just general tips. It took a few years to get my hair and clothing under control and, I kid you not, I had a guy i had known for most of my life approach me at a party when I was about 19 and literally stop short and say "wow, you grew up nicely, thats surprising". haha.

Now I can laugh about it. I'm pretty confident in who I am and what I look like and part of my is glad for the humility that was forced upon me since I can really relate much better to people and can help my younger cousins through their awkward teen years (mostly this consists of showing them a photo of me at 11 and telling them at least they arent that bad and letting them know what you look like then has NOTHING to do with what you will/can look like later so they will get through it).

I hate how despite the years that have passed, I still look at these old photos and the first thing I notice is whether I was having a good week or bad week with trich behind the glasses. I see a teenager uncomfortable in her own skin and a situation made even harder because of the "trich secret". I hope one day I will look back on this differently but I just hope that the memories I'm creating now arent dictated, albeit years later, by how good I'm doing with my trich. I've come to accept it as part of who I am, who I'll always be, but that doesnt mean it doesnt still hurt and make me sad for the years lost.

Here's to a better future, one where I'm in control, not trich. I wish you the same.